The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.
April 15, 2019
Together we are strong
This is a photo of me and my youngest sister at our weekly physiotherapy. We are sisters and we have both Pompe disease. We train every week two times at the physiotherapy. We love to be busy and keep us as strong as possible with good balanced exercises. We live in the Netherlands and our expertise centre will soon start with a research about a healty lifestyle for people with Pompe disease. As we know more, we let you know. Together we are strong.
Wilma Treur, Netherlands, 55 years