Inspired by Banksy, his strong visual messages often reproduced in this format, I created this document for 2021. These are the logos of Pompe Disease worldwide.
Lucy, 62 yrs, France.
Showing posts with label France. Show all posts
Showing posts with label France. Show all posts
April 15, 2021
April 15, 2020
H ospital free O ral P ermanent E nzymes
I hope that doctors, researchers, pharmaceutical companies listen and learn from the Pompe people, who know their bodies best and that they find a cure that will not only help Pompe but all other lysosomal storage disorders.
That every consultation starts with a personal of evaluation of fatigue, pain etc so when the patient who has always being saying they are fine and giving themselves a 1 or a 2, when they say they are in pain and give themselves a 9, that the medical team will listen and react. It should be worldwide, systematic and interdisciplinary. It costs nothing and it would improve communication and interpretation between patient and doctor.
H ealthy
O pportunities
P ositive
E xpections
H uman
O pinion
P ersonalised
E valuations
April 15, 2019
Ma force et mon espoir: ma famille - My strength and hope: my family
Olivier Cavallero, 43 ans, Marseille, France
Boots don't have to be used for walking
Moving on with pompe, think out of the box !
We are greater than Pompe.
Lucy Golder, 60 years old, France
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