Blog: International Pompe Day

The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.

Showing posts with label India. Show all posts
Showing posts with label India. Show all posts

April 15, 2019

I Care for Rare


I would like to share my Podcast (https://www.sunoindia.in/1-in-20000/care-for-a-rare/)
 
Prasanna Shirol
President Pompe Foundation, Co founder and Exe Director - ORDI, India
Age 48 years
Labels: India, IPD2019
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