Because I didn’t know that I had a rare disease when I was a child, I just feel that I am always weaker than my peers, and the one who was bullied in the children. My living condition was bad, I couldn’t eat meat even once a month. I remember that the first time I ate banana, it seemed to be the fifth and sixth grades. When I was in my teens, I want to make money by myself. So in the hottest summer, I went to the cornfield to dig wild herbs. I climbed trees to collect cicadas to sell. I felt that I had to work on my own hands. In the busy season, I have to cook at home and wait for my parents to come back from the field.
Although the primary school marks has always been among the best in the class, but in the junior school, I really didn't want to go to school. I didn't want to wait for a moment, so I dropped out of school when I was in the second year of junior school. When I started working, because my body was weaker than my peers, I was often ridiculed by others. But I never retreated. At the beginning, I was doing some work in the electric welding department in the village. But after more than a year, the electric welder changed jobs. The boss couldn't find others to do it. I took the initiative to try it. The boss at the time looked astonished. Untill now I could still remember his expression at that time, because I never did the electric welding before, and the boss didn’t believe that I could do it. Although the first time I did not do well, I finished it. My body is weak but my brain is not stupid. I can do it if others can do it. In this way, I worked for four years.
Four years later, I borrowed money from my friends and opened the store. When I got married, I even didn’t have money to take photos, my wife had some reluctance, but there was no way. It was just too poor at the time. I gave birth to my son in the second year after I got married. I worked harder to make money. After several years of struggle, I repaid all my debts. Later I bought a car and built a new house in the village. At that time, many relatives and friends didn't understand why I didn't travel and always working. I just smiled, because only myself know what I have happened.
I have been living in a old house for ten years. When my living condition are getting better and better, God made a big joke with me. My body was deteriorated. I started to seek medical treatment and finally diagnosed as Pang. A severe pneumonia coma made me lost consciousness. At that time, I was really scared. I knew that I could not go to die like this. when I was lying on the hospital bed, I thought of my wife, son, and parents. I used strong willpower to tell myself to be strong. It’s also God’s bless and I was alive. In order to treat the disease, the original savings are all spent, and the car is sold, the body is not as good as before, I lost the ability to work.
Because of the illness, I don’t want to interact with the outside world, and lost contact with my friends slowly. At the same time, they are far away from me. The special medicine Myozyme is my only hope of living, otherwise I really don’t want to live like this because I involved many people in the trouble. I don’t know how long my friends and I can persist. I think of a line in the movie, "It is a natural disaster to have a disease but no medicine, however having medicine but no many is a man-made disaster." I hope that use the medicine to return to the society as soon as possible. Let me use my own hands to continue my wonderful life!
