We can reach so far as our mind goes!

CHRISTOS SAMARAS

AGE 52

GREECE

"We should get stronger every day of our life to battle for our breath and stepping. This is our life, it is not an easy one, but it is beautiful and we must keep moving forward"

Don't lose hope (you never know what tomorrow will bring)

Happy International Pompe Day from the Acropolis of Athens (Greece). The Acropolis of Athens and its monuments are universal symbols of the classical spirit and civilization and form the greatest architectural and artistic complex bequeathed by Greek Antiquity to the world.

My name is Penny, I am 51 years old and I have been diagnosed since 2002 because of my brother who also has Pompe.

I want to say that I am so grateful being a part of Pompe community all over the world. I found a new family who supports me and shares with me the latest insights into Pompe diagnostics and treatments.

Thank you all Pompe warriors for your stories and experiences, your feedback, your answers and guidance, your love and compassion, your emotional support and inspiration that helped me be a survivor for about 20 challenging years without any treatment.

Caregiver

Feeding the newborn canary, giving back hope and love. Survivor and caregiver

Maria from Athens Greece aged 10