How does my life look living with Pompe?
It looks difficult from the outside. It feels difficult from the inside. Dis-ease = Not easy.
But when I think about my every day or week ahead it doesn't really cross my mind. My mind is filled with children, husband, family, friends, business, my dog, food shopping, exercise, sports, house cleaning, entertaining, concerts, movies, and catching up with friends. There isn't much room left!
At this particular time in my life I am happy. I feel positive. I feel fit, healthy and strong despite my legs being at their weakest.
I am exercising in small group personal training and we have a lot of fun. A good PT will train to your abilities and I am never disappointed! I train not only for my body but for my mind. I believe movement = healthy body and healthy mind. It also helps that I train with this awesome bunch of people!
So what will I be doing on International Pompe Day in 2019? Boxing Class after work at 7pm! 😊
Catherine Jenner
44 years old
Melbourne, Victoria
Australia
