Having lived with Pompe in our lives for nearly 30 years; we have always been proud and grateful to have a son who has constantly moved on; taking many of life's challenges in his stride. This is the text of a school announcement at the age of 15:
The recipient of this year's award is a young person who has impressed everybody around them by their chearfulness and resilience in the face of illness and continual hospital treatment from a young age.
Coming to Bohunt School in Year Seven, concerns were expressed about how this pupil would cope in such a large and jostling environment. No one need have worried. This young person slotted right in, taking a full, active and independent part in school life and becoming a popular and respected member of the tutor group.
Last year, this pupil underwent a serious spinal operation, resulting in a long stay in hospital. On top of this, additional medical complications have meant regular treatment in The Netherlands and London, to test a ground-breaking new drug that could help others in a similar situation.
Throughout these difficult times, this person has never been anything other than cheerful and resilient. Never have they made an issue of their medical problems, nor used them as a reason for school work to suffer. Rather, they have faced up to daily life with unfailing cheerfulness, politeness and courage, supported by the tutor group and being a caring and supporting friend themselves.
In recognition of their courage and zest for life and school, I am proud and delighted to announce that this year's Rosemary Kermode Trophy is awarded to Jamie Muir of Year 10s.
And we remain very proud!
Allan and Barbara Muir, UK
