The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.
April 15, 2021
We can reach so far as our mind goes!
CHRISTOS SAMARAS
AGE 52
GREECE
"We should get stronger every day of our life to battle for our breath and stepping. This is our life, it is not an easy one, but it is beautiful and we must keep moving forward"
