The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.
April 15, 2021
Silvana Uboldi (Italy)
Sono Silvana Uboldi sono affetta da glicoginosi tipo 2 ... abito ad Albairate (Mi).
I am Silvana Uboldi I am affected by GSD type 2 .. I live in Albairate (Mi).
