The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.
April 15, 2021
A Pompe Life
We are not our disease, our life deserves to be lived fully and we must learn to enjoy every moment!
