The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.
April 15, 2021
Eric Smit (The Netherlands)
Hello
I'm Eric Smit, 52 years old/young😀and live in the Netherlands
We have a holidayhome on the Veluwe were we ride bikes and walk in the woods a lot
For the future i hope with the enzym therapy and physiotherapy to stay stable
