April 15, 2021

Jonathan from the Netherlands

Hello! My name is Jonathan and I am 9 years old. I live in the Netherlands with my father, mother, brother Micha en sister Noa. I have Classic Infantile Pompe disease and every week I get my infusion at home. Of course I learn to read and calculate at school, but I also get physiotherapy and hydrotherapy here. I love to game and play with my brother and sister.

Jonathan 
9 years old
The Netherlands

Kind regards,

Margrieta Vedder