Happy International Pompe day from the Sir Harold Hillier Gardens and arboretum in the UK. (near Romsey Hampshire)
Comprising 72 hectares accommodating over 42,000 trees and shrubs in about 12,000 taxa, notably a collection of oaks, camellia, magnolia and rhododendron.
A big hello to all my friends in the Pompe Community, in the UK and abroad . I will never forget you all and the support I have received over the years.
Many of you I will have met at conferences or at meetings.
A big thank you also to all the medics involved in the Pompe story which we joined in 1991 before any treatment options available.
Your dedication and expertise lead to treatment today and will in time lead to future developments.
Together we are strong !
Barbara Muir
Trustee/ and proud to be the Mum of Jamie Muir.
Pompe Support Network
Pompe.uk
Comprising 72 hectares accommodating over 42,000 trees and shrubs in about 12,000 taxa, notably a collection of oaks, camellia, magnolia and rhododendron.
A big hello to all my friends in the Pompe Community, in the UK and abroad . I will never forget you all and the support I have received over the years.
Many of you I will have met at conferences or at meetings.
A big thank you also to all the medics involved in the Pompe story which we joined in 1991 before any treatment options available.
Your dedication and expertise lead to treatment today and will in time lead to future developments.
Together we are strong !
Barbara Muir
Trustee/ and proud to be the Mum of Jamie Muir.
Pompe Support Network
Pompe.uk
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