Hello, everyone. My name is Morgan Burroughs. I am 24 years old, living in Asheville, North Carolina. My story is a bit different, which means my hopes for the future are a bit different, mainly because I have many obstacles to overcome. I have experienced many things in my short 24 years of life. I went many years without treatment, hoping I could just make it through until treatment became available; "(obviously, that was the case!)." Flash forward to 2003, the first generation of treatment for Pompe disease became available and I was lucky enough to be in the trial of Myozyme. There are many hopes I have for the future, not only with my disease process, but for my personal life as well. I hope there will be a second generation of treatment for Pompe that removes more of the stored glycogen. I believe there will be a cure some day for this "monster" that we live with so that future patients will not have to endure the trails and tribulations that patients in the present has to overcome. My goal for the future is to find the path that I am supposed to lead and understand why things are the way they are in my life. We all have a purpose in this life, we just have to search for that reason, and if you just look deep enough, you might find the answers in the most unexpected places. I hope to inspire others to stay positive as I do myself, utilizing any and all resources available to see our way through this unpredictable journey.
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Sincerely,
Morgan Burroughs
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