We hope that we can continue Nate's legacy and have Pompe Disease added to routine Newborn Screening here in Australia. May every newborn be given the best possible chance to fight Pompe Disease and lead a normal, healthy life. May they run around, play and laugh. We hope that no more Pompe families have to say goodbye to their babies.
We hope to make a difference.
Maddy and Jenna
Australia
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