The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.
April 15, 2020
Hope
My HOPE for the future is for the government of New Zealand to fund the standard of care treatment for Pompe Disease that is available in nearly 80 other countries.
