The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.
April 15, 2020
Hope for the future
Our hope for the future:
For there to be a cure, not only for pompe but for all rare diseases. 👏🙏🏻💚
