Blog: International Pompe Day

The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.

April 15, 2020

Pompe Warrior

Here is Margot! She was diagnosed by newborn screen with LOPD This February. My hope is that she draws strength from her situation and inspire others. I hope she defies the odds and lives the life she hopes for.

Amanda Holthaus (mother) 
Labels: IPD2020, USA
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Blog Archive

  • ►  2022 (1)
    • ►  April (1)
  • ►  2021 (31)
    • ►  April (31)
  • ▼  2020 (22)
    • ►  May (1)
    • ▼  April (21)
      • Things that Have Brought Hope this Year
      • Hope
      • My hope to be heard.
      • Hope for the future
      • Duke Pompe Disease Clinical and Research Team
      • What Is Next
      • Pompe is rare - Hope is not
      • We Hope to make a difference
      • The AMDA's Hopes for the Future
      • Hope for the Future
      • Spark Joins the Pompe Community in Celebrating our...
      • My hope for the future
      • A treatment that helps everyone
      • Be the help to generate hope
      • Dreams for a Cure, Soon!!!
      • Star-shaped block by origami
      • SANOFI GENZYME JOINS IN THE ‘HOPE FOR THE FUTURE’
      • My Hopes
      • HOPE for POMPE
      • Pompe Warrior
      • H ospital free O ral P ermanent E nzymes
  • ►  2019 (38)
    • ►  April (38)

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