The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. The goal of International Pompe Day (IPD) is to foster international awareness of Pompe Disease.
April 15, 2020
Pompe Warrior
Here is Margot! She was diagnosed by newborn screen with LOPD This February. My hope is that she draws strength from her situation and inspire others. I hope she defies the odds and lives the life she hopes for.